Illinois Alzheimer’s Advocacy

 
 

Join the Fight for a World Without Alzheimer’s®

The Alzheimer’s Association Illinois Chapter, is the largest group in Illinois advocating on behalf of those living with Alzheimer’s disease. We invite you to add your voice to more than 27,000 other Illinoisans in speaking up for the needs and rights of people and families facing Alzheimer’s disease in our state.

CLICK HERE TO BECOME AN ADVOCATE TODAY!


Alzheimer’s awareness license plates

As you know, Illinois is experiencing a severe fiscal crisis, leading the Alzheimer’s Association to focus our public policy efforts on raising awareness. Vehicles outfitted with specialty Alzheimer’s Awareness license plates will have a tremendous impact – raising funds as well as the profile of this critical cause and, in turn, mobilizing our leaders in government and citizens to prioritize Alzheimer’s.

Our mission of a World Without Alzheimer’s® is a step closer to reality with each policy success we achieve – and Alzheimer’s Awareness license plates are an excellent example of that progress.

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Dedicated Advocates Make an Impact

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This year, more than 1,300 advocates from all 50 states came together in Washington D.C. for the 2017 Alzheimer’s Association Advocacy forum. Sharing their personal experience with the disease and speaking up for increased research funding and improved access to care and support, advocates – including a record-breaking 62 from Illinois – met with their elected officials to urge them to make Alzheimer’s a national priority.

According to the New England Journal of Medicine, Alzheimer’s disease is the most expensive disease in America, the cost of caring for those with Alzheimer’s was $259 billion in 2017, with $175 billion paid by Medicare and Medicaid. Without a cure or preventive treatment, these costs will only continue to rise.

While there is still a lot to do it is imperative we draw our attention the progress being made.

Last year, our advocates helped secure the largest increase in federal Alzheimer’s disease research funding in history and our request for $400 million increase has been included in the FY17 funding bill. These funds will directly impact the research, policy, and care needed to find treatments, and ultimately, a cure. At this year’s Forum in March, after two days of interactive team building and training – advocates stormed Capitol Hill, urging elected officials to further invest in Alzheimer’s disease research and support the association’s main federal public policy priorities. $414 million additional dollars was requested for the FY18 federal budget, driving us closer to the $2 billion that NIH scientists say we need annually to defeat this disease.

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Alzheimer advocates play an important role in improving the quality of care and quality of life for people with Alzheimer’s disease and their families by working to improve dementia care and services; improve access to community-based care; improve quality care in residential settings; and expand funding for research and public programs serving people with dementia.

As an advocate, you will:

  • Receive regular updates about current legislative and public policy issues.
  • Stay on top of policy and legislative issues through alerts and updates.
  • Make calls or write to legislators to forward public policy priorities to improve quality of life for those with Alzheimer’s.

Each individual voice is critical, but by advocating together, our voices have the ability to create a world without Alzheimer’s disease.

CLICK HERE TO BECOME AN ADVOCATE TODAY!

Advocates

In the Illinois Chapter, we have close to 23,000 registered advocates. The current Alzheimer's Association Strategic Plan calls for a minimum of 900 advocates per Congressional district. An advocate makes no particular time commitment to public policy, but is asked to take periodic action to improve the quality of care and quality of life for people with Alzheimer’s disease and their families.

Role of an Advocate:

  • Receive regular updates about current legislative and public policy issues.
  • Stay on top of policy and legislative issues through alerts and updates.
  • Make calls or write to legislators to forward public policy priorities to improve quality of life for those with Alzheimer’s.

Each individual voice is critical, but by advocating together, our voices have the ability to create a world without Alzheimer’s disease.

Become an advocate »

 

Lead Advocates

The lead advocate program was designed to enhance the Association’s state government relations efforts through personal contact with targeted members of the Illinois legislature by building relationships with lawmakers and their staff.

  • Each is a grassroots volunteers committed to maintaining a greater level of involvement in the Association’s policy work at the state level.
  • They play a critical role in helping the Alzheimer’s Association meet Illinois’ legislative goals, working directly with chapter staff to implement Illinois advocacy activities in the community.
  • Lead advocates also help us make the visits and interactions needed to make our strategic plan successful.

For more information please contact Jen Belkov via email jbelkov@alz.org

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Become an Alzheimer’s Association Ambassador!

A major part of the our mission is advancing public policies that will help find a cure and care for the people and families facing an Alzheimer’s diagnosis, and the leaders in this quest are not just scientists and fundraisers. By making the voices of our community heard by officials in Washington D.C., in one hour per month or less, Alzheimer’s Association volunteer Ambassadors play a critical role in bringing our vision of a World Without Alzheimer’s® closer to reality.

Ambassadors are grassroots volunteers who commit to working for at least one year as a member of a team, serving as the main points of in-district contact for Illinois’ congressional delegation. They work directly with their member of Congress and his/her staff to advance Alzheimer’s Association federal legislative goals. Absolutely no experience is necessary, and we will work with you to customize a volunteer plan that fits your schedule and interests.

If you are ready to do any of the following, you are ready to join the Alzheimer’s Association Ambassador team:

  • Post on Facebook
  • Visit a legislative office with Alzheimer’s Association staff members and team members
  • Attend a town hall meeting with Alzheimer’s Association staff members and team members
  • Tweet
  • Help us plan a local event and work with Alzheimer’s Association staff to invite your Congressman
  • Send letters to the editors of local newspapers (we can help with the writing!).

Tell Us More About Yourself

We would love to bring your passion to improve the quality of care and quality of life for people and families facing Alzheimer’s onto our team. For more information, please contact Jen Belkov via email jbelkov@alz.org.

State Policy Issue

Resources

★ Illinois Public Policy Successes ★

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Every year, the Alzheimer’s Association® organizes the Advocacy Forum, a 3-day event in Washington D.C in which advocates from all 50 states descend on our nation’s capital to directly engage members of Congress about the importance of making Alzheimer’s disease a national priority.

The first two days are focused on educating advocates about the Association’s current legislative priorities, and training attendees to effectively persuade members of Congress to support our mission. A variety of guest speakers share insights on a range of issues from the current state of medical research to updates on the political landscape and workshops on the most effective lobbying methods that will ensure representatives and senators listen to what you have to say. Celebrities also regularly attend to show their support for the incredible that work advocates do.

The Advocacy Forum is both extremely successful in moving legislators to support our agenda and a fantastic opportunity for advocates from all over the country to come together in solidarity, feel part of a movement bigger than any one person could create individually, and share ideas for achieving even greater success.

For more information please click here or contact Jennifer Belkov via email jbelkov@alz.org.

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Take the 2017 State of Illinois Alzheimer’s Disease Annual Survey »

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